CCN Forum: Aiding Difficult and High-Stakes Medical Decision Making—Research on Tracheotomy Decisions for Critically Ill Children
Haoyang Yan, CCN Graduate Student
Friday, September 13, 2019
4464 East Hall Map
Many challenges exist in medical decisions where there is a continuum of treatment possibilities. For instance, parents are sometimes faced with value-laden tracheotomy decisions, choosing between accepting a machine-dependent life for their child or allowing death. Both providers and parents find these decisions difficult to discuss and make. Thus, there is a need to understand and improve the decision process for promoting high-quality provider-parent communication and decision making. A series of qualitative and quantitative studies have revealed that parents lack understanding of long-term implications in order to accurately forecast possible outcomes. An experimental survey study has shown that other parents’ narratives of child’s long-term quality of life and home care challenges reduced the tendency to choose tracheotomy and increased concerns for future outcomes. These findings suggest that providing other parents’ experiences could be a feasible way to support parents to make informed decisions. An intervention development study is in progress to produce a variety of narratives for decision aiding.
|Source:||Happening @ Michigan from Department of Psychology, Cognition & Cognitive Neuroscience, Weinberg Institute for Cognitive Science|